Skip to main content

Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus.

What is Nystagmus?

Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

What we do.

We provide support and assistance to children and young people with Nystagmus. in addition, we offer an advocacy service and free 24/7 support on our website. telephone helpline and e mail facility is also available free of charge

 

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

 

 

 .

Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and Development Manager
Telephone
E-mail
info@nystagmusnet.org
Website
Website Address
Notes

 

.

Where to go

Name
Nystagmus Network
Address
70, Hyde Vale
London
London
London
Postcode
SE10 8HP
Notes

.

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available, 

   .

Other Details

Costs

Table of costs
Table of costs
AmountCost Type
Nil FREE
Details
Membership is available however not a pre requirement to access free support and information

Availability

Referral required
No
Referral Details

.

We support all age groups free of charge. Self referral via telephone or email  24/7 support and advice on website  9-5 telephone support service

   .

Last updated on 14/06/2021
rating button